It sounds crazy, but except to comb my hair in the morning, I never SEE myself during the day. I didn't have a clue what I really looked like, until this weekend. I set up video camera and recorded myself doing my normal things.....using computer, watching TV and walking. Boring stuff. Until I watched them.
I never knew my right foot does a weird snake like dance in the air when I try to do anything with my right hand. I had no idea I was walking with my arm flailing outward. I know my arm gets jerky in the evenings, but didn't know the amount it jerks depends on the intensity of what I am watching on TV. Criminal Minds? Jerks like crazy. An old black and white comedy? Very little. I had no idea I was sitting there watching TV every night with my mouth hanging open and my head cricked to one side.
It was scary seeing myself, and also educational. According to my Wonderful Husband, I don't make these movements all day, just at certain times, and some are worse than others. He says sometimes I sit quite still. It looks painful, but isn't, so at least that's one thing to smile about. The other plus is all the extra calories I burn.
PS: I don't have these extreme movements all day long, just when my medicines are at their peak. YES, these jerky movements are side effects, only the last one, mouth hanging open is caused by the PD.
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Thank you for reading this story, I hope you enjoyed it. This is just one of a hundred stories in my book, Parkinson's Humor - Funny Stories about My Life with Parkinson's Disease. Please consider purchasing a copy from Amazon.com or your favorite online book seller. Thank you and have a Happy Parky Day!