ON - when the medicine IS working and your symptoms are better
OFF - when the medicine is NOT working or has worn off
TREMORS - those shaking body parts
RIGIDITY - when you feel like you are in a body cast
DYSTONIA (dis TOE nee uh) - those severe cramps you get
BRADYKINESIA -(BRADY ki NEE zee uh) like you are in slow motion
DYSKINESIA - (dis ki NEE zee uh) those rhythmic movements (like Michael J Fox) that are a side effect of the dopamine meds
POSTURAL INSTABILITY - when you are stooped over or can't maintain your balance (help, I've fallen and I can't get up)
MASKING - when your face no longer shows emotion
Don't worry about not pronouncing them correctly, just do the best you can. I'll write a song about them, like the song from Mary Poppins: Supercalifragilisticexpialidocious Once we sang along with her, everyone could pronounce it!
Song written. Here it is, words go along with the song, so sing along with me and we'll be Learning the Parkie Lingo together, plus singing is good therapy for our voices.
You can find all my videos on my YouTube channel:
National Parkinson Foundation
ReplyDeleteKaraoke time! Learn Parkinson's Lingo with Bev Ribaudo's catchy jingle.
Thank you :-) Wish my dad whom died of Parkinson's was here to hear this and as his caregiver it would have been good for me to hear as well - keep the video coming. Joan
ReplyDeleteThank you! Loved it! I will show this to my mother and I'm sure she will love it too. :-) Maria
ReplyDeleteGreat jingle, Bev. Thanks so much, I'm going to share it with our support group. :o) Rebecca
ReplyDeleteBev, you amaze me always. You are a bright light to all. I am sharing. Thank you. Linda G
ReplyDeleteBev, thank you so much for having the courage to write - it really does help.
ReplyDeleteBev, you are making me a Happy Parkie! Thank you
ReplyDeleteKeep up the good humor!
Good job Bev as always!
ReplyDeleteDr. Maria DeLeon
Fantabulous, Bev!! Got us all singing it :)
ReplyDeleteYou have been a big help with the terminology. Thank you. I also enjoy your sense of humor.
ReplyDeleteShelly